- THE PROGRAMMEIt's effective and easy
- EDUCATIONReduce stone formation rates by 80%
- ABOUT THE TESTING PROCESSQuestions you may have about the testing process
- ABOUT YOUR DIAGNOSISFrequently asked questions about your diagnosis
- TESTIMONIALSComments about the Litholink Kidney Stone Programme
- DIETChange your diet to help reduce risk of stone formation
- CYSTINE STONE TESTINGChildren require special care and evaluation
Questions You May Have About The Testing Process
Your physician can enroll you in Litholink’s prevention program. Our program is designed to be as easy as possible for the patient to follow and consists of four distinct steps:
- 1. Complete a urine collection to find out why you are forming stones.
- 2. Get on a treatment plan that will prevent future stones.
- 3. Follow your treatment plan as prescribed by your doctor.
- 4. Complete a follow up urine collection to make sure your treatment is working.
Once your physician has started you on your customized treatment plan, it is up to you to follow it every day in order to prevent new stones. Your treatment plan will vary depending on your diagnosis but may include fluids, dietary changes, and/or medications.
It is critical to remember that fluid and diet changes are as important as any medications your doctor may prescribe for you. If you stop following your treatment plan, your chemistries will go back to a stone forming state within DAYS.
The following FAQs will, we hope, answer most of the questions you may have but, if in doubt, please contact our Customer Services team on 0800 043 1040. You can download a pdf copy by clicking on this link.
Questions on the testing process:
- What is the start time?
- It says in my instructions not to take any vitamin C five days before the test begins. Can I take vitamins or herbal supplements that my doctor has recommended?
- I take many prescription medications. Should I continue them?
- Can I complete the collection during my period?
- I am in the middle of doing my collection and I am not going to have enough room in my collection container. What should I do?
- What happens if I’m not at home and I have to go to the bathroom?
- There are small, black specks inside my collection container. Will this interfere with my test?
- Do I refrigerate my urine?
- I received my kit, but I am sick. Should I do the test when I am not feeling well?
- I am doing the two-day collection. The nurse told me to try and do this on a working day and a non-working day. I cannot take the collection container to work. Do I have to collect on a work day?
- I woke up in the middle of the night, and I forgot to collect my urine that time. Are you going to reject my test?
- I am doing the two-day collection. Do I have to do the collection two days in a row?
- Should I drink more when I take my test?
- Is the preservative poisonous? What happens if it gets on me? Will it harm the toilet?
- I have finished the collection. What do I do now?
“What is the start time?”
Answer: Your “Start Time” is the FIRST time you urinate when you wake up to BEGIN the day.
If you are doing two, 24-hour collections, the first day starts when you wake up to BEGIN the day. The first time you urinate, you flush it away. Although you do not collect this first urine in the collection container, this is the START TIME for day one. Collect all the urine you produce for the next 24 hours into the collection container.
When you wake up on the second day of your collection, put that morning’s urine into the day one collection container. This time is the STOP TIME for day one and the START TIME for day two (use the same time for both). Collect all the urine you produce for the next 24 hours in the second collection container. At the beginning of the third day, put that mornings urine into the day two collection container. This is the STOP TIME for day two and the end of the entire collection.
“It says in my instructions not to take any vitamin C five days before the test begins. Can I take vitamins or herbal supplements that my doctor has recommended?”
Answer: Yes. Anything your doctor has advised you to do, please continue. If you are taking supplements that contain 100mg or more of vitamin C and they have not been recommended by your doctor, please stop taking them 5 days before and during the collection process.
“I am in the middle of doing my collection and I am not going to have enough room in my collection container. What should I do?”
Answer: Call our Customer Services team on 0800 043 1040. We refer to you as being a “high volume” (HV) patient. You drink and urinate more than other patients. Unfortunately, you may not realise this until you are in the middle of the collection process. In this case, STOP collecting and start a new collection. You must call Cellmark and state that you need a HV collection kit.
A high volume kit contains: 2 collection containers per 24-hour collection, 2 urine preservatives per 24-hour collection, 2 green-topped tubes per specimen, and special HV instructions.
Question 6: “What happens if I’m not at home and I have to go to the bathroom?”
Answer: If this happens, just carry any small, clean container to urinate into. You have up to 8 hours to get the urine back into the collection container that has the preservative in it.
“There are small, black specks inside my collection container. Will this interfere with my test?”
Answer: No. Those “specks” sometimes occur because the print from the preservative tube label comes off when exposed to liquid. This will not interfere with the test.
“Do I refrigerate my urine?”
Answer: No. A urine preservative is provided for each collection container. The preservative keeps the urine free of bacteria. If you put the collection container into the refrigerator, the sample(s) will be rejected. Refrigerated urine leads to less accurate results because stone forming salts become crystallized (from the cold) and thus the results are less viable.
“I received my kit, but I am sick. Should I do the test when I am not feeling well?”
Answer: No. Your test results are reflective of what you consume in each 24-hour period. Kidney stone disease can be a result of one’s diet and fluid intake. Therefore, it is important to eat and drink as you normally do. If you are not feeling well, you may not be eating and drinking as you normally do. Please wait to start your collection until you are feeling well enough to eat and drink as you normally do.
“I am doing the two-day collection. The nurse told me to try and do this on a working day and a non-working day. I cannot take the collection container to work. Do I have to collect on a work day?”
Answer: No. Generally, people eat and drink differently on workdays and non-work days. We understand that not everyone can do the collection during working hours. In this case, do the collection on two non-working days (usually this is Saturday and Sunday), but on one of those days, mimic what you would normally eat and drink during a workday. This gives us a more accurate representation of your overall diet and fluid intake.
“I woke up in the middle of the night, and I forgot to collect my urine that time. Are you going to reject my test?”
Answer: Yes. Collect all urine, even in the middle of the night. Any collection period that lasts less than 22 hours or more than 26 hours will be rejected.
“Should I drink more when I take my test?”
Answer: No. Do not change your fluid or diet routine. We want to see why you have been forming stones. Any diet or fluid changes should take place after you finish your collection.
“Is the preservative poisonous? What happens if it gets on me? Will it harm the toilet?
Answer: The preservative does contain toxic chemicals, just like many household cleaners, and should be handled with caution and kept away from children and pets. If you get it on you wash the area with soap and water. Don’t flush the plastic bottle down the toilet, we encourage you to pour carefully or use the spout when you discard the left over urine specimen into the toilet. It will not harm the toilet.
The urine preservative’s effectiveness expires after a certain amount of time, so we need to get the sample(s) sent back to us immediately. If we do not receive your sample(s) in a timely manner, we will reject your sample(s). If you have questions, please call our Customer Services team on 0800 043 1040.